Sickle cell disease care partner Carla Lewis shares details about her son’s journey including what they encountered with support, helpful treatments, and how treatments have evolved over the years – while Maya Bloomberg shares advice for families with sickle cell trait.

Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help reduce the cost of sickle cell disease treatments.

Sickle cell disease patient advocate and care partner Carla Lewis shares advice about staying engaged and ways that she helped her son transition to adult care.

Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis discuss disparities that patients have experienced, biases that exist, and how sickle cell patients and advocates can continue to help in reducing care disparities.

Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg share ways to organize care aspects like sickle cell disease medications and financial resources.

Sickle cell disease patient advocate Carla Lewis, hematology nurse practitioner Maya Bloomberg, and Dr. Marwan Shaikh explain resources patients and care partners can utilize to take advantage of financial assistance programs and Medicaid and how to optimize financial assistance resources.

Sickle cell disease patient advocate Carla Lewis and Maya Bloomberg explain improvements in process for sickle cell care and how patients and care providers can advocate for their best care.

Dr. Marwan Shaikh shares key ways that SCD patients and providers can help work toward closing the gap of medical mistrust.

Dr. Marwan Shaikh and Maya Bloomberg explain obstacles for patients in sickle cell disease care, challenges to researchers in finding and refining cures, and how patients and others can help improve the possibilities of cures.

Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help advance sickle cell disease care, resources for locating clinical trials, and how to advocate for improved sickle cell care.

Dr. Marwan Shaikh and Maya Bloomberg share about sickle cell patients who may benefit from clinical trials and why BIPOC representation is vital for optimal clinical trial results.

As part of ongoing efforts to expand sickle cell disease knowledge and to reduce health inequities, DHH hosted its first Sickle Cell Health Hub Huddle with sickle cell disease experts.

Maya Bloomberg defines gene editing versus gene therapy and explains gene editing research that is examining treatment advances for sickle cell patients.

Medical laboratory scientist Dr. Kyle Riding shares advice for patients to advocate for their health.

Dr. Kyle Riding shares lab test patients who sometimes show variation and which patient groups show generally show consistency.

Dr. Kyle Riding explains visual signs checked in urinalysis, the reasons for checking specific levels, and how to advocate for yourself if you notice changes in your test results.

Dr. Kyle Riding shares insight about the different test balances and medical conditions that can be monitored or picked up via urinalysis.

Dr. Kyle Riding explains how the liver can be impacted by moderate and excessive alcohol consumption – and an enzyme that can indicate alcohol overconsumption.

Dr. Kyle Riding explains the importance of prothrombin time, its function in the body, and how providers can help ensure a balance for the patient.

Dr. Kyle Riding shares insight about what low liver enzymes can mean and cases when low levels can be medical concerns.