How Can Sickle Cell Providers Advocate for Equitable Diagnostics?
Maya Bloomberg shares how providers can assist with raising sickle cell education and awareness, screening recommendations, and increasing patient self-advocacy.
Sickle Cell Patient Turned Patient Navigator Shares Perspective
How has a sickle cell patient’s experience impacted his work as a patient navigator? Hear from sickle cell advocate John Masembe.
Young Adult Black Sickle Cell Patient Transitions to Adult Care
The sickle cell care transition from pediatric to adult care is a vulnerable time, so what can be done to help these patients? Hear from sickle cell advocates John Masembe and Jemela Williams.
Sickle Cell Disease Care Barriers and Building Solutions
What are sickle cell disease care barriers? What can we do to educate as well as bring awareness to current and future hematologists?
How Can We Combat Unconscious Bias in Sickle Cell Care?
What are some ways to combat unconscious bias in sickle cell care? Sickle cell advocates John Masembe and Jemela Williams share their perspectives.
Focal Segmental Glomerulosclerosis and Key Diagnostic Testing
What is focal segmental glomeruloslcerosis (FSGS), and what should sickle cell patients know about the condition? Hear from hematology nurse practitioner Maya Bloomberg.
Diagnostic Testing Inequities | Impact of Social Determinants of Health for Sickle Cell Patients
How do social determinants of health impact diagnostic testing equity? Hear from sickle cell advocates John Masembe and Jemela Williams.
What Kind of Support Does the Sickle Cell Community Need?
Sickle cell patients need more support, but what kind of support will have the most impact? Hear from sickle cell advocates John Masembe and Jemela Williams.
Understanding the Bone Marrow Transplant Experience in Sickle Cell
What does the bone marrow transplant journey look like in sickle cell? What are the challenges? Hear from sickle cell advocates John Masembe and Jemela Williams.
Adolescent to Adult Sickle Cell Care | Key Advice for Patients
Are there specific tests and assessments to keep up with during the pediatric to adult transition? Hear from hematology nurse practitioner Maya Bloomberg.
Impact of Artificial Intelligence on Sickle Cell Tests
Maya Bloomberg shares how AI may impact sickle cell tests in the screening, diagnosis, and treatment of patients.
Sickle Cell Screening and Outcomes | Impact of Stigma and Discrimination
Maya Bloomberg shares her knowledge about disparities in sickle cell screening and care and solutions toward equity.
Hydroxyurea Use in Sickle Cell and Other Conditions
Maya Bloomberg explains the history of hydroxyurea use and how it can help in sickle cell care.
Importance of Diagnostic Equity for Sickle Cell Community
Maya Bloomberg discusses diagnostic equity, the prevalence of sickle cell, and ways that diagnostic equity and health outcomes can be improved.
What Should Sickle Cell Patients Know About Lab Test Ranges?
How are laboratory reference ranges determined as it relates to sickle cell? Hear from hematology nurse practitioner Maya Bloomberg.
How Do Sickle Cell Disease and APOL1 Impact FSGS?
Sickle cell disease is listed in some research as a cause of focal segmental glomerulosclerosis (FSGS), and APOL1 kidney disease treatments are under research. Here’s a look at FSGS and the APOL1 gene and how they relate to SCD and other conditions.
Sickle Cell Disease Treatment Access and Resources Around the World
Sickle cell disease (SCD) care is not always easy to locate, and we at DHH want to continue our efforts working toward health equity for SCD patients. Here’s a look at sickle cell disease resources outside the U.S. along with a research update.
Heart Behind the White Coat | Sickle Cell Expert Maya Bloomberg, APRN
Hematology nurse practitioner Maya Bloomberg shares her professional journey as a bedside nurse to becoming a provider and advocate for sickle cell patients.
Heart Behind the White Coat | Sickle Cell Expert Marwan Shaikh, MD
Sickle cell disease expert Dr. Marwan Shaikh shares his journey to becoming a hematologist and sickle cell specialist in this Heart Behind the White Coat (HBWC) program.
Sickle Cell Disease in AYA Patients, Reproductive and Sexual Care
Sexual and reproductive health (SRH) concerns can be top of mind for some female AYA sickle cell disease patients. What do these concerns of these patients show? Here’s a look at the results of a recent sickle cell disease survey.