How Can Sickle Cell Providers Advocate for Equitable Diagnostics?
Maya Bloomberg shares how providers can assist with raising sickle cell education and awareness, screening recommendations, and increasing patient self-advocacy.
Focal Segmental Glomerulosclerosis and Key Diagnostic Testing
What is focal segmental glomeruloslcerosis (FSGS), and what should sickle cell patients know about the condition? Hear from hematology nurse practitioner Maya Bloomberg.
Adolescent to Adult Sickle Cell Care | Key Advice for Patients
Are there specific tests and assessments to keep up with during the pediatric to adult transition? Hear from hematology nurse practitioner Maya Bloomberg.
Impact of Artificial Intelligence on Sickle Cell Tests
Maya Bloomberg shares how AI may impact sickle cell tests in the screening, diagnosis, and treatment of patients.
Sickle Cell Screening and Outcomes | Impact of Stigma and Discrimination
Maya Bloomberg shares her knowledge about disparities in sickle cell screening and care and solutions toward equity.
Hydroxyurea Use in Sickle Cell and Other Conditions
Maya Bloomberg explains the history of hydroxyurea use and how it can help in sickle cell care.
Importance of Diagnostic Equity for Sickle Cell Community
Maya Bloomberg discusses diagnostic equity, the prevalence of sickle cell, and ways that diagnostic equity and health outcomes can be improved.
What Should Sickle Cell Patients Know About Lab Test Ranges?
How are laboratory reference ranges determined as it relates to sickle cell? Hear from hematology nurse practitioner Maya Bloomberg.
Heart Behind the White Coat | Sickle Cell Expert Maya Bloomberg, APRN
Hematology nurse practitioner Maya Bloomberg shares her professional journey as a bedside nurse to becoming a provider and advocate for sickle cell patients.
Overview of Sickle Cell Treatment Landscape
Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg provide an update on current treatments, research study results, and treatment improvements currently in development.
Can Sickle Cell Disease Warriors Lower Risk of Pain Crises?
Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg share situations that have triggered pain crisis for patients and their advice for reducing pain crisis risk.
Mother Shares Progress of Son With Sickle Cell Disease
Sickle cell disease care partner Carla Lewis shares details about her son’s journey including what they encountered with support, helpful treatments, and how treatments have evolved over the years – while Maya Bloomberg shares advice for families with sickle cell trait.
How Can Sickle Cell Warriors and Families Advocate for Lower Cost Therapies?
Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help reduce the cost of sickle cell disease treatments.
Different Disparities Displayed in Sickle Cell Care
Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis discuss disparities that patients have experienced, biases that exist, and how sickle cell patients and advocates can continue to help in reducing care disparities.
Tips and Resources to Keep Track of SCD Health Information
Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg share ways to organize care aspects like sickle cell disease medications and financial resources.
Understanding Insurance for Sickle Cell Care
Sickle cell disease patient advocate Carla Lewis, hematology nurse practitioner Maya Bloomberg, and Dr. Marwan Shaikh explain resources patients and care partners can utilize to take advantage of financial assistance programs and Medicaid and how to optimize financial assistance resources.
How Can the Shortage of Hematologists for Sickle Cell Care Be Addressed?
Sickle cell disease patient advocate Carla Lewis and Maya Bloomberg explain improvements in process for sickle cell care and how patients and care providers can advocate for their best care.
What Are Some Challenges of Finding a Cure for Sickle Cell Disease?
Dr. Marwan Shaikh and Maya Bloomberg explain obstacles for patients in sickle cell disease care, challenges to researchers in finding and refining cures, and how patients and others can help improve the possibilities of cures.
How Can SCD Warriors and Families Help in Novel Therapy Research?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help advance sickle cell disease care, resources for locating clinical trials, and how to advocate for improved sickle cell care.
What Should SCD Warriors Know Before Joining a Clinical Trial?
Dr. Marwan Shaikh and Maya Bloomberg share about sickle cell patients who may benefit from clinical trials and why BIPOC representation is vital for optimal clinical trial results.