Heart Behind the White Coat | Sickle Cell Expert Marwan Shaikh, MD
Sickle cell disease expert Dr. Marwan Shaikh shares his journey to becoming a hematologist and sickle cell specialist in this Heart Behind the White Coat (HBWC) program.
Overview of Sickle Cell Treatment Landscape
Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg provide an update on current treatments, research study results, and treatment improvements currently in development.
Can Sickle Cell Disease Warriors Lower Risk of Pain Crises?
Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg share situations that have triggered pain crisis for patients and their advice for reducing pain crisis risk.
How Can Sickle Cell Warriors and Families Advocate for Lower Cost Therapies?
Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help reduce the cost of sickle cell disease treatments.
Different Disparities Displayed in Sickle Cell Care
Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis discuss disparities that patients have experienced, biases that exist, and how sickle cell patients and advocates can continue to help in reducing care disparities.
Tips and Resources to Keep Track of SCD Health Information
Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg share ways to organize care aspects like sickle cell disease medications and financial resources.
Understanding Insurance for Sickle Cell Care
Sickle cell disease patient advocate Carla Lewis, hematology nurse practitioner Maya Bloomberg, and Dr. Marwan Shaikh explain resources patients and care partners can utilize to take advantage of financial assistance programs and Medicaid and how to optimize financial assistance resources.
How Can We Close the Gap of Mistrust in BIPOC Communities?
Dr. Marwan Shaikh shares key ways that SCD patients and providers can help work toward closing the gap of medical mistrust.
What Are Some Challenges of Finding a Cure for Sickle Cell Disease?
Dr. Marwan Shaikh and Maya Bloomberg explain obstacles for patients in sickle cell disease care, challenges to researchers in finding and refining cures, and how patients and others can help improve the possibilities of cures.
How Can SCD Warriors and Families Help in Novel Therapy Research?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help advance sickle cell disease care, resources for locating clinical trials, and how to advocate for improved sickle cell care.
What Should SCD Warriors Know Before Joining a Clinical Trial?
Dr. Marwan Shaikh and Maya Bloomberg share about sickle cell patients who may benefit from clinical trials and why BIPOC representation is vital for optimal clinical trial results.
Lost in Transition, Optimizing Sickle Cell Disease Care
As part of ongoing efforts to expand sickle cell disease knowledge and to reduce health inequities, DHH hosted its first Sickle Cell Health Hub Huddle with sickle cell disease experts.
Does Standard of Care Change for Adult Sickle Cell Warriors?
Dr. Marwan Shaikh and Maya Bloomberg explain the treatment that has been used as the sickle cell gold standard of care, newer treatment options, and an online resource for finding the latest SCD research information.
Questions to Ask When Transitioning to Adult Sickle Cell Care
Dr. Marwan Shaikh and Maya Bloomberg offer advice on questions to ask providers, online resources for locating sickle cell care, which specialists are trained in SCD, and the latest treatments to ensure your specialist is aware of.
Do Sickle Cell Pain Crises Increase or Decrease With Age?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis, share challenges that young adult SCD patients may encounter with their care and offer advice for how patients can advocate for their best care.