Avoiding and Identifying Sickle Cell Pain Crisis Triggers
Sickle cell disease advocate and care partner Carla Lewis shares things that have triggered pain crisis for her son and actions she took to help him avoid pain crisis over the years.
Mother Shares Progress of Son With Sickle Cell Disease
Sickle cell disease care partner Carla Lewis shares details about her son’s journey including what they encountered with support, helpful treatments, and how treatments have evolved over the years – while Maya Bloomberg shares advice for families with sickle cell trait.
How Can Sickle Cell Warriors and Families Advocate for Lower Cost Therapies?
Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help reduce the cost of sickle cell disease treatments.
Advice From Mother of a Sickle Cell Warrior
Sickle cell disease patient advocate and care partner Carla Lewis shares advice about staying engaged and ways that she helped her son transition to adult care.
Different Disparities Displayed in Sickle Cell Care
Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis discuss disparities that patients have experienced, biases that exist, and how sickle cell patients and advocates can continue to help in reducing care disparities.
Understanding Insurance for Sickle Cell Care
Sickle cell disease patient advocate Carla Lewis, hematology nurse practitioner Maya Bloomberg, and Dr. Marwan Shaikh explain resources patients and care partners can utilize to take advantage of financial assistance programs and Medicaid and how to optimize financial assistance resources.
How Can the Shortage of Hematologists for Sickle Cell Care Be Addressed?
Sickle cell disease patient advocate Carla Lewis and Maya Bloomberg explain improvements in process for sickle cell care and how patients and care providers can advocate for their best care.
How Can SCD Warriors and Families Help in Novel Therapy Research?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help advance sickle cell disease care, resources for locating clinical trials, and how to advocate for improved sickle cell care.
Lost in Transition, Optimizing Sickle Cell Disease Care
As part of ongoing efforts to expand sickle cell disease knowledge and to reduce health inequities, DHH hosted its first Sickle Cell Health Hub Huddle with sickle cell disease experts.
Do Sickle Cell Pain Crises Increase or Decrease With Age?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis, share challenges that young adult SCD patients may encounter with their care and offer advice for how patients can advocate for their best care.