Carla Lewis
 
 

Carla Lewis

Founder and CEO
Kids Conquering Sickle Cell Disease Foundation

Founder
Young Adult Sickle Cell Alliance Program

Carla Lewis is a compassionate mother, public speaker, and patient advocate from Jamaica. After her newborn son was diagnosed with sickle cell disease, Carla recognized the lack of sickle cell resources and started a support group. She's continued her advocacy for many years and is Founder and CEO of the Kids Conquering Sickle Cell Disease Foundation and Founder of the Young Adult Sickle Cell Alliance program. Carla also works to educate and promote legislation that encourages more effective, efficient, and up-to-date healthcare policies by advocating with Rare Disease Legislative Advocacy (RDLA) and National Organization for Rare Disorders (NORD).

Featured Programs

Featured Programs
Avoiding and Identifying Sickle Cell Pain Crisis Triggers
Sickle Cell
DHH Program, Carla Lewis, sickle cell pain crisis, sickle cell pain crisis triggers, overheating, sun exposure, hydration, sickle cell disease
Avoiding and Identifying Sickle Cell Pain Crisis Triggers
Sickle Cell
DHH Program, Carla Lewis, sickle cell pain crisis, sickle cell pain crisis triggers, overheating, sun exposure, hydration, sickle cell disease
Sickle Cell
DHH Program, Carla Lewis, sickle cell pain crisis, sickle cell pain crisis triggers, overheating, sun exposure, hydration, sickle cell disease
Mother Shares Progress of Son With Sickle Cell Disease
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN, sickle cell disease, young adult sickle cell patients, sickle beta-thalassemia, National Sickle Cell Association of America, Caribbean ethnicity
Mother Shares Progress of Son With Sickle Cell Disease
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN, sickle cell disease, young adult sickle cell patients, sickle beta-thalassemia, National Sickle Cell Association of America, Caribbean ethnicity
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN, sickle cell disease, young adult sickle cell patients, sickle beta-thalassemia, National Sickle Cell Association of America, Caribbean ethnicity
How Can Sickle Cell Warriors and Families Advocate for Lower Cost Therapies?
Sickle Cell
DHH Program, Maya Bloomberg MSN APRN, Marwan Shaikh MD, Carla Lewis, sickle cell disease, sickle cell disease treatment, sickle cell disease advocacy
How Can Sickle Cell Warriors and Families Advocate for Lower Cost Therapies?
Sickle Cell
DHH Program, Maya Bloomberg MSN APRN, Marwan Shaikh MD, Carla Lewis, sickle cell disease, sickle cell disease treatment, sickle cell disease advocacy
Sickle Cell
DHH Program, Maya Bloomberg MSN APRN, Marwan Shaikh MD, Carla Lewis, sickle cell disease, sickle cell disease treatment, sickle cell disease advocacy
Advice From Mother of a Sickle Cell Warrior
Sickle Cell
DHH Program, Carla Lewis, young adult sickle cell patients, Rare Disease Day, sickle cell disease advocacy
Advice From Mother of a Sickle Cell Warrior
Sickle Cell
DHH Program, Carla Lewis, young adult sickle cell patients, Rare Disease Day, sickle cell disease advocacy
Sickle Cell
DHH Program, Carla Lewis, young adult sickle cell patients, Rare Disease Day, sickle cell disease advocacy
Different Disparities Displayed in Sickle Cell Care
Sickle Cell
DHH Program, Maya Bloomberg MSN APRN, Marwan Shaikh MD, Carla Lewis
Different Disparities Displayed in Sickle Cell Care
Sickle Cell
DHH Program, Maya Bloomberg MSN APRN, Marwan Shaikh MD, Carla Lewis
Sickle Cell
DHH Program, Maya Bloomberg MSN APRN, Marwan Shaikh MD, Carla Lewis
Understanding Insurance for Sickle Cell Care
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN, Marwan Shaikh MD, financial assistance, health insurance, Medicaid, sickle cell disease care, sickle cell disease
Understanding Insurance for Sickle Cell Care
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN, Marwan Shaikh MD, financial assistance, health insurance, Medicaid, sickle cell disease care, sickle cell disease
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN, Marwan Shaikh MD, financial assistance, health insurance, Medicaid, sickle cell disease care, sickle cell disease
How Can the Shortage of Hematologists for Sickle Cell Care Be Addressed?
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN
How Can the Shortage of Hematologists for Sickle Cell Care Be Addressed?
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN
Sickle Cell
DHH Program, Carla Lewis, Maya Bloomberg MSN APRN
How Can SCD Warriors and Families Help in Novel Therapy Research?
Sickle Cell
DHH Program, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, SCD warriors, sickle cell disease research, sickle cell trait research, sickle cell disease clinical trials
How Can SCD Warriors and Families Help in Novel Therapy Research?
Sickle Cell
DHH Program, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, SCD warriors, sickle cell disease research, sickle cell trait research, sickle cell disease clinical trials
Sickle Cell
DHH Program, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, SCD warriors, sickle cell disease research, sickle cell trait research, sickle cell disease clinical trials
Lost in Transition, Optimizing Sickle Cell Disease Care
Sickle Cell
Article, DHH Article, BIPOC, health disparities, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, sickle cell disease, pediatric sickle cell disease, sickle cell research, adult sickle cell care, Kids Conquering Sickle Cell Disease Foundation, Uriel E. Owens Sickle Cell Disease Association of the Midwest, Dreamsickle Kids Foundation, Breaking The Ssickle Cell Cycle Foundation
Lost in Transition, Optimizing Sickle Cell Disease Care
Sickle Cell
Article, DHH Article, BIPOC, health disparities, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, sickle cell disease, pediatric sickle cell disease, sickle cell research, adult sickle cell care, Kids Conquering Sickle Cell Disease Foundation, Uriel E. Owens Sickle Cell Disease Association of the Midwest, Dreamsickle Kids Foundation, Breaking The Ssickle Cell Cycle Foundation
Sickle Cell
Article, DHH Article, BIPOC, health disparities, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, sickle cell disease, pediatric sickle cell disease, sickle cell research, adult sickle cell care, Kids Conquering Sickle Cell Disease Foundation, Uriel E. Owens Sickle Cell Disease Association of the Midwest, Dreamsickle Kids Foundation, Breaking The Ssickle Cell Cycle Foundation
Do Sickle Cell Pain Crises Increase or Decrease With Age?
Sickle Cell
DHH Program, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, sickle cell disease, sickle cell pain crisis, DHH Video
Do Sickle Cell Pain Crises Increase or Decrease With Age?
Sickle Cell
DHH Program, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, sickle cell disease, sickle cell pain crisis, DHH Video
Sickle Cell
DHH Program, Marwan Shaikh MD, Maya Bloomberg MSN APRN, Carla Lewis, sickle cell disease, sickle cell pain crisis, DHH Video